I first want to say how much I appreciate your comments on my blog posts. You are encouraging and inspiring and I love hearing from you. Thank you! After the fourth month of the cancer marker number on my monthly blood tests (CA 27.29) going up, my oncologist ordered a PET/CT scan to see what is going on.

The scan results verified that the Faslodex treatment I have been on for just over a year is no longer doing its job. The changes aren’t huge, but are worth addressing. The overall impression on the scan results says, “There are persistent left pleural tumor involvement with two new small foci and more prominent and extensive uptake in the posterior costophrenic angle.” The report is four pages, including many words I don’t understand.

What my oncologist (who understands all the words) said is that a ‘small foci’ is like a pencil point, and having two more of them in the lining of my left lung is not a big deal. All the tumors in the lining of my left lung are small, and there is no evidence of metastasis anywhere else in my body. She said I don’t have any tumor big enough to do a biopsy (if we wanted to do that).

Even though the changes are small, we are going to change my treatment since any progression of disease means the Faslodex isn’t stopping it any more. I will be switching to Aromasin (chemical name: exemestane), the one aromatase inhibitor I haven’t taken. It’s for postmenopausal women with estrogen-positive breast cancer.

I am feeling grateful to still be thriving, soon (in May) to celebrate 30 years of living with cancer. My oncologist says she doesn’t know many patients who have lived with cancer as well and as long as I have and she believes it is because of all that I do to create a terrain not conducive to the growth of cancer.

So, I will continue doing what I have been doing – eating in an 8-hour window and fasting 16 hours a day; eating a high-fat, low carb (no grains or sugar) diet that is heavy on veggies and low-glycemic fruit; exercising daily; meditating; taking supplements; injecting Iscador; and looking for joy and purpose in life.

I have been accepted to be part of a study at the University of Wisconsin on Outliers. They are studying 50 women who have lived longer than usual with metastatic breast cancer. Of the 50, I have lived the 8th longest. I’m eager to find out what science says about why I have lived so long and so well with metastatic breast cancer. The website for the study is https://outliers.cancer.wisc.edu/.

Subscribe to Jan's Blog